Comment by Ryder123
2 years ago
This – a thousand times, this.
I spent 5-6 years dealing with something like long-covid (only it started before covid). It had symptoms that seemed clearly related to an infection, but I also noticed effects that were similar to Alzheimer/dementia. Specifically sundowning.
I would become unthinkably exhausted and my mood would change drastically between the hours of about 5:00 and 8:00pm. Later in the evening, things would magically start clear up and I'd feel closer to normal.
That was, by far, the worst period of my reasonably long life, and it's still not something I'm over, I can just manage it much better. If anyone is dealing with something similar, I'm happy to talk about things that have worked for me.
I have read weird statements by people who had ALS. Some patients tell that some of their symptoms are seasonal. I am curious what worked for you? Thanks!
Curious as well as to what worked for you. I might have a milder version of what you have. Very similar in that it’s mainly during 5-8pm