Comment by car

Sorry to read about your illness. Without knowing specifics, it is sometimes possible to get access to trial drugs via a compassionate use exemption[0].

You could find out which centers close to you are part of the trial, and contact them about getting access to treatment.

I've previously contacted a drug manufacturers directly to inquire about access via a trial center. This was for a pancreatic cancer drug made by Halozyme. The trial was ultimately halted due to disappointing results.

Please take into account that a drug still in trial may ultimately fail to meet its endpoints, as in the above case.

[0]https://www.fda.gov/news-events/public-health-focus/expanded...