Comment by grimblee

Hello,

I felt deeply moved by your story.

My first born (and only kid) just birthed with a genetic mutation, very random one that may at any point in his life manifest in various degree of danger for his life.

I don't know what tomorrow has for me but your story made me think about this deep fear of one day losing him.

And at the same time I know 100 years ago we wouldn't even have noticed it until too late, at least now we can monitor and try to prevent danger...

Courage to you and your wife. I can't fathom but I can feel sympathy to your situation.