Comment by wojo1206

1 year ago

My son has been born with brain damage due to chromosomal abnormalities. He is just 2 years old. He can't walk, talk, he is feed through tube and doesn't seem to be interested with surrounding very much. And, he is scheduled medical procedure to treat another congenital condition in couple weeks. I understand your pain and suffering. I understand how much you and your family have changed over this difficult period. We also got healthy 5 year old daughter. Devastation, strangeness, changes and hardship that is more hard that anything.

I am glad that this forum raises human suffering issues and topics beyond bits and bytes. Before my son was born I was so unaware of how much support society has built to help cope and threat complex medical issues. I had no idea we got: feeding therapists, swallow studies, sleep studies, endocrinologists and literally hundreds specialties in health industry.