Comment by janeerie
1 year ago
We have the same mutation and have a deaf son (we had no idea we were carriers until after he was born and failed the hearing screening). I've often wondered if we had decided to have another child if I would have done IVF and selected a hearing child. And I don't think I could do it. It's not rational at all, but it would feel like a rejection of my son (who is doing amazing with his cochlear implant).
Glad to hear the cochlear implant is working well. It's fortunate that the condition we both carry is remedied through a prosthetic like that. It definitely assuaged some of our fears to have that option. If it comes to it that I can have a third child in the future, I will hope that Regeneron has their GJB-2 gene therapy ready, but if not we may well take our chances with the implant.
Stop wondering, you are wasting energy you could be spending on them instead - they were born out of a beautiful, real event that happened exclusively between 2 people. Enjoy all of that.