Comment by morjom
7 days ago
I can relate. I got diagnosed a bit after taking the pandemrix vaccine, after I started showing the symptoms, back in 2010-2011. As mentioned by someone, sodium oxybate is one medicine to maybe look into, but I don't think it'll necessarily help with wakefulness, more so with sleep and cataplexy.
I got it after pandemrix vaccine as well. Sodium oxybate absolutely helps with wakefulness, turns out you feel more awake and are less prone to fall asleep if you get good sleep at night (although induced by medicine).