Comment by Nemi

No, I never had any tests beyond the simple blood tests checking my electrolyte levels. This was before I realized that those tests won’t show you the problem. I simply made a hypothesis and tested, over and over.

I have toyed with the idea of visiting a nephrologist, but I just can’t psych myself up for the long slog that would be. I live in a fairly large city but given the rarity of these syndromes, it would not surprise me at all if any local nephrologists have even encountered anyone with one of these conditions. I have also considered seeing a ‘functional doctor’, but just have not gone down that road. Honestly, I seem to have my symptoms under control, so what they could add at this point? There is no treatment or cure for this, only managing symptoms (assuming this is what I have, to be fair).

It all makes sense to me though. Though this is something that got bad enough for me to make a concerted effort to figure out just in the last decade, if I reflect back on my life I have seen problems associated with it back into my 20’s. In my case, I don’t think it is something that “happened” to me, but something I was born with that is just progressing as I get older.

By the way, I was re-reading a comment of yours from up above and I realized that you were referring to heart palpitations like you were already getting too much potassium. Here is the thing – you can get heart palpations from too much AND too little potassium. Also from too little calcium. Just food for thought.

I have updated my profile with my contact info. If you ever go down the route of getting diagnosed or have any other questions, feel free to contact me anytime. Good luck!