Comment by Yizahi
2 days ago
I just want to note that asking people with severe autistic symptoms may be as pointless as asking a person with alzheimer. They have no frame of reference in that particular moment. But that is only my hypothesis, so I may be wrong. But for example I have an ADHD for decades and I'm sick and tired of this quite obviously illness and disability. I would immediately pay if there was a one time cure for it, no debate even for a second.
I just want to note that asking people with severe autistic symptoms may be as pointless as asking a person with alzheimer
well that is the ethical question, isn't it? i mean for severe symptoms that cause obvious problems, sure. but what about lesser symptoms? where do we draw the line? the affected person should have a say in that, and, what i find much more important, outsiders need to be neutral. while those affected obviously can't be neutral about it, those outside often aren't either. we define what is normal, and we try to explain every deviation from normal as a problem that needs to be fixed.
i am not diagnosed, but i do have behaviors that i think are not normal. they are not getting in the way of my life, so i don't need them fixed, nor do i want to fix them, but if i were to be diagnosed then there sure is someone who would insist that all those diagnosed should be fixed whether they want it or not.
and even worse those that want to take away my autonomy because they believe that anyone diagnosed is not capable of leading a normal life and should not be allowed to do certain things, such as raising children.
did you see the movie "i am sam"? sam is one of those with severe autism who as you say don't have a frame of reference for their own disability. regardless of whether sam could be cured, or whether he should be cured, it should be possible to create an environment where he can live together with his daughter. who gets custody should not even matter. you don't separate siblings either just because one sibling is not able to care for the other. so why separate sam and his daughter? it's done in the belief that children better be raised by normal people and that the bond they have with their own less capable parents doesn't matter.
the point i am trying to make is, cure or not, first of all, as a society we need to make accommodations for those who are ill or disabled. we do it for those using wheelchairs or for blind or deaf people, so why not for autistic people as well?
instead of changing every individual to conform to society, i believe society should adapt to accommodate all individuals so each one can live a dignified life.