Comment by jtbaker
2 days ago
As someone who was recently diagnosed and treated for Uveal Melanoma (get your annual eye exam and retinal scans!), and occasionally struggling with some intrusive thoughts about the potential for liver mets, reading about this treatment brought me so much joy. Bless Zhen Xu!
Hey, I'm curious, did you have symptoms or did you just find it by chance?
no symptoms. first identified the lesion a few years back and it hadn't changed over a few subsequent appointments. exam this year, it had grown a small amount 5mmx5mm to 6mmx8mm - still considered small, but the change was enough for the Drs to recommend treatment. I have been treated by Dr. Dan Gombos[1] at MD Anderson and received excellent care.
[1] https://faculty.mdanderson.org/profiles/dan_gombos.html
Interesting, thanks.
Best wishes!
1 reply →
I have a relative with the same disease. They went to a an eye doctor because of visual artifacts. Turns out the tumor was so big it caused retinal detachment. Basically, most people get diagnosed at a very late stage because it's mostly asymptomatic.