Comment by deaux

The most important thing is to learn to expect and plan ahead, so that you don't get caught by surprise as much as it is reasonably possible. I do not expect anyone to act with humanity, so I start playing the system as early as possible. If I think something might be a problem in two weeks, I start calling them today, knowing that it'll take them two weeks minimum to take me seriously. If I go the the ER, I take movies and games with me (and lots of paracetamol) because I know it'll take several hours for anyone to even say hello to me, let alone do something concrete. I also, maybe more importantly, do not expect anything from the human side. Basically I see them as robots, so I deal with them as robots: explain everything calmly, repeat myself 100 times, and even more importantly, do not get angry. You get angry, you lose. It doesn't matter if you have an internal bleeding and you're dying, the moment you start screaming, nobody will take you seriously anymore. You have to be slow, strong, and systematic: repeat yourself, call again in 1h, then in 4h, then next morning, then next morning, until at some point something happens.