Comment by sieste
4 days ago
The late Jake Seliger and his widow Bess blogged at length about their experience navigating the medical system after his squamous cell cancer diagnosis. That was in 2023-25 though.
jakeseliger.com
bessstillman.substack.com
This is his last article I think. https://news.ycombinator.com/item?id=41157974
At this website, the cancer articles are tagged, https://jakeseliger.com/category/cancer/.
The first cancer-related post - https://jakeseliger.com/2024/05/25/the-one-year-anniversary-...
Bess is an ER doctor, but even with all that medical knowledge, navigating cancer care seemed difficult.
So those with no medical knowledge from themselves or family or friends may have a much more difficult time.
His articles forever changed how I view terminal diseases and my stance on how to manage them.
If I ever get such a disease, I have it in writing with my family that I will not seek any treatment after the first recommendation, I will not do experimental treatments and I will not prolong a life of suffering. Rather go out under my own terms.
I'm forever grateful to Jake for writing his experiences in such detail and candidness.
While I would never pass judgment on anyone who does not want to seek excruciatingly painful treatment, I am grateful for all those who do and add to the data that allows medicine to progress and increase quality of life for those in the future.
It is only by giving people too much and too little chemotherapy that humans figured out the dosages and regimens that optimize survival and minimize relapse rates.
I think about it a lot when I see kids in the pediatric cancer ward, and what decision I would make for myself, versus the decision to subject a child to very painful treatments to kill the cancer. And how mine only has a good prognosis because so many others went through hell, and didn’t survive.