Comment by strangescript

3 years ago

There is no 100% correct answer here. As soon as you speed up the process, there are still going to be people that just miss out, and then we will have people saying 4 months is too long, it should take 2 months, or let AI approve it, etc. Desperation skews perspective.

The issue with having a standardized approach to people getting experimental drugs is it opens up its own kind of mini-market unless the implication is they would be required to be free by law. And desperation is not the right mindset to make law or rational decisions.

Not trying to sound heartless, its just not as easy as saying "go faster".

On the contrary, I personally believe it's deeply immoral to tell a dying person to "just wait, it's for your own good".

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  • Couldn't agree more. There is literally nothing to lose, and potential to save a life.

    Blocking this is effectively murder.

    • Drug policy is larger than this single man. There are trade offs with different approaches here. “There is literally nothing to lose” is simply false. Restrictions against selling whatever to dying patients is because people _will_ take advantage of them and sell snake oil. If you’re okay with that, why not just let people steal from those terminally ill?

      My dad recently died. There are always new treatments being studied and some day one of those treatments might actually be able to cure people with the same disease. That day didn’t come early enough for my dad. That sucks but it doesn’t change the fact that drug policy is made for society as a whole and not only for my dad. This isn’t some conspiracy where a cold bureaucracy is letting people die. Sometimes your luck just runs out.

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