Comment by don_neufeld

1 year ago

My son turned 18 this week, and his condition is similar, with additional physical limitations (severe CP via PVL)

Parenting him has been the hardest thing I’ve ever done, but there have also been moments of joy.

Hang in there, take care of yourself, and get as much help as you can. Being a carer is a huge job.

I wrote a little here: https://x.com/dnf/status/1746775939961528693?s=20

4 comments

don_neufeld

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khaledh  1 year ago

What a beautiful young man <3 God bless him. Thank you. I know there are many parents out there going through the same circumstances. It's always heartwarming to see this kind of solidarity and support. It does help.

  • don_neufeld  1 year ago

    Thank you for your kind words, I agree that he was such a beautiful child.

    I've been reflecting on all the good things about him this week, and one thing I realized today is that because he was so small, I would still pick him up and carry him around as a 10 to 12 year old sometimes. That's something other parents could only do with their children for a much shorter time, and I appreciate now that that was something special about our time together.

dopeboy  1 year ago

Hi Don - I don't know you but I feel like I do now. And your son as well. Thank you for sharing that tweet.