Comment by djaychela

9 months ago

As someone who has a terminal cancer diagnosis (and I'm mid-way through the range of time I was told I had left, months, FTR), I don't agree with a lot of this. And I'm essentially on my deathbed (mentally), even though I'm currently not bed-bound.

Yes, my state now is not a representative state of the one I was in a year ago before my health started failing. But I'm still the same person. I forgot that briefly after my terminal diagnosis, and starting doing things I thought were the right things (making sure things would be OK for my wife, tidying up a litany of messes that would be hard for her to deal with without just giving up and selling things for pennies or giving them away), but after a few weeks and speaking to the right people, I started living more normally again.

Yes, my priorities have changed massively - things that I thought were important 4 months ago are truly meaningless to me now - but many things that are important to me now were so before. And they will be until I cease to exist. I'm making the most of the time I have left because it's important that my experience at this point is as good as it can be, and because I want my wife to have good memories of our last months together.

I've never suffered from 'reason 2'. I've always felt I made the right decision at the time with the information I had and the person that I was at the time. So I don't have many regrets - none of significance to speak of, certainly. I know I am lucky in this respect.

Reason 3 is meaningless, IMO - both generally and certainly to me. I'm 53.

And I don't think many people really do think about this seriously until it's actually on the table for them. I certiainly know I didn't - even last year when I had an operation which hopefully would have removed the cancer and given me years of life, I hadn't really thought about the finality of death and what it means (or doesn't) to me. FTR I'm an Atheist, and I think that 2026 will have as much meaning/experience for me as 1969 (i.e. before I was born).

Thank you for sharing.

I’m in the exact same boat as you and what you wrote matches my experience and thoughts almost to the word.

These days my motto is “Make today a good day” and every day I do my best to live up to that.

  • I’m not deeply thoughtful about this stuff, but my personal philosophy could be called “positive existentialism.”

    I am here. It is amazing that I exist, and have an opportunity to be alive and aware. I don’t want to waste it, and so I try to say “yes” to life. And life comes to us moment by moment, day by day. I don’t want to regret things I’ve done, but I also don’t want to regret things I didn’t do.

    I’m not in the position that either of you are in (sorry about that btw) but in a sense we all are, and just don’t realize it yet.

    • > in a sense we all are, and just don’t realize it yet.

      one of the luckiest breaks you can catch in life is to live through something that forces you to realize this.

Thank you for sharing. You don't have to share any more, but if you would, I'd like to know what things have become truly meaningless to you. Did any of those things surprise you, or were they what one would expect in this situation (career, retirement, and similar)?

  • There were a whole load of things that I thought were important - mostly objects I owned and projects that I was going to do (some with them, some without). I have done a lot of clearing out so that my wife doesn't have to 'next year' (our euphemism for after I die) - partly because I want to decrease the load on her as much as possible and partly because I know the things in question and their value.

    I still have a large workshop full of stuff (tools, building materials, etc), and none of it means anything to me now, whereas it did before - I was worried about all of these objects, which sounds a bit strange, but I've mostly been a 'caring about objects' person most of my life.

    There are things that need to be done that I know I won't get done now, and they don't bother me at all - now that I've ensured my wife will be OK financially and the house (which I've been extending so we could live comfortably) is mostly complete and I've finished the small jobs needed to get it to that state with some help from friends. Also, I've had a few other things I've needed to get rid of that I didn't want to (one was my van, main form of transport, which had a mechanical fault that in 'normal' times I would have fixed myself, but would have taken 3-4 days work plus machining time and costs). Just sold it and let it go, and I've not thought about it since. Same for the motorbike I owned and loved for 14 years - once it had gone, that was that. There has been something freeing in letting go of these things.

    The biggest thing, though, is playing music. I've played guitar since I was 13, and made most of my income from playing and teaching music (and music technology). Aside from a project I have completed for my funeral (a song my wife wrote and played), I've not touched anything musical - not picked up a guitar or anything like that. There's been no desire to do so whatsoever, it's just 'gone'. I stopped listening to music for a month or two, but that's back now, fortunately.

    I didn't really have a 'career' - I've been self employed since 2000 and fallen into things which have worked for me (and I have loved doing, which is good). If I had the energy, I don't think I'd still be doing work, but I still care about it and its quality, so that is still there.

    Effectively, I have 'retired' with my wife, who is long-term off work (because of the work she does, she can't work while going through this). So at least I have that and we've spent all day every day together since January. This has been meaningful.

Thank you for sharing, much respect to you.

I was wondering, are you looking into religion at all? Does your inner self sometimes suggest to you that there is a God, and do you feel an urge to pray to Him?

Not that you asked my advice but as a believer I would ofc gently nudge you to do so. I believe with conviction that the doors to God are wide open until the very moment we breath our last.

  • I'm not the person you responded to, but In my experience most people who choose the label of "atheist" have spent time looking into religion. The nonreligious people who haven't are much more likely to just describe themselves as non-religious.

    As an atheist, the only time or two I've felt an urge to pray has been when I've felt very alone, and missed the comfort that came from praying and believing that someone with real power was listening. If that's what you believe, of course that's going to feel comforting (plus it provides opportunity for mindfulness and reflection).

    Both fortunately and unfortunately, Christianity (which you did not mention, but your language is consistent with) did not hold up to scrutiny for me, so that full level of comfort isn't there, but thankfully many of the benefits can be found in meditation.

    • If you’re looking for comfort in Christianity, I agree that you aren’t going to find it. Jesus explicitly says that we will suffer in this life. There are comforts in the Christian life but on the whole, it’s not a tool for finding “benefits” or feeling fulfilled.

      1 reply →

    • The comfort that religion such as Christianity gives is in the belief that any suffering is temporary and meaningful, while the state of non-suffering that shall follow will be permanent.

      2 replies →

  • You do realize that that's also likely true for all the thousands of Gods that've ever been imagined by humans? So I am gently nudging you to consider praying to them as well, just to be on the safe side. ;)

    • >I am gently nudging you to consider praying to them as well, just to be on the safe side. ;)

      Lol do you guys remember Benny, from the mummy? There was a scene where he was going through necklaces of various religions, praying, and that's the image I can't get out of my head right now.

      1 reply →

    • I don't pray to God "just to be on the safe side".

      I pray to God because I have come to know Him from within my deepest inner self.

      I haven't come to know any other God besides the Almighty and Most Merciful, Who created the cosmos and everything in it.

      2 replies →

  • I sometimes really wish religious people would engage in the reflection they expect from others and start to realize how offensive this is, especially to someone on their deathbed.

My wife is in your situation and she wouldn’t agree with the article either. Travel is the only thing she dreams about doing. Everything else she wants to keep as normal as possible for as long as possible.