Comment by carefulfungi

In my experience having had a parent suffer this way, you lose them before they are dead and you grieve along the way. I can understand the "souring" phrasing - in that there is less affection for the altered person in the present even while feeling a duty for their care and a deep love for who they were.

I'm grateful for this story - it's powerful to see examples of autonomy at end of life - and contrasts starkly with the experiences many of us have with aging parents. End of life, at least in the US, can be deeply flawed and misery for all.