I'm genuinely fine sharing my medical history, but I don't know if my lack of shame about e.g. testicular torsion, or the way that I lost my notes for a bit and unnecessarily got repeats of vaccines I'd already had, are a sign of being in possession of a boring medical history, or an indication of an uncommonly diminished shame response.
Whatever it is, I am aware that my lack of concern here is something which makes me different from normal people. I don't really get why people in general are ashamed of their medical histories, but I nevertheless absolutely do support everyone's right to keep such secrets, because there's a few specific cases where the medical history reveals something socially damaging either in the present or with a risk of it becoming so in the future, the obvious example of which is an abortion given the US seems to be facing a loss of freedom in this regard.
(Perhaps most people have something socially damaging in their medical histories, and I've just not noticed because nobody says the thing?)
The "I have nothing to hide" argument doesn't work for security, and it doesn't work for health care records either.
You might not have anything to hide now, but you might in the future. Someone you are closest to gets murdered or into a horrific violent accident right in front of you. Despite your best efforts this gives you crippling PTSD and you are committed involuntarily for a 72 hour hold. Now your future employer (legally or not) runs a quick records check and sees you have mental health concerns and really doesn't care about the context. Why roll the dice? Go with the candidate who was in a close 2nd and already a coin flip who doesn't have such a thing in their history.
Plenty of other scenarios that can happen to anyone even if they live the most perfect boring life imaginable and never do anything interesting ever. Plenty more for folks who step off the reservation of "acceptable social/corporate behavior" even a little bit.
Plus, if you want to protect folks like in your example of having an abortion on their record - you need to vehemently defend their right as a boring person yourself as that's the only way such individuals will ever be protected. It's like herd immunity but for privacy.
It's not about the people who have nothing to hide. It's about the people who do.
I don't know about 'a few specific cases'. STIs, mental health issues, pregnancies (interrupted or not, voluntarily or not), contraception methods and/or lapses, anything often misunderstood like MS or neurodegenerative diseases, huntington, substance use/abuse (voluntary or not), victim of assault (sexual or not), sterility/fertility/impotency/incontinence, any manageable medical issue someone might use to not give you a job, to rent you an apartment, although you do actually manage it well...
None of those I'd want shared anywhere, to anyone, against my will. Those (overall) are not rare.
This is not honestly engaging with GP's statement.
The benefit only accrues if the sharing is universal.
I am too private a person to agree with GP, but it does seem that most health issues that are visible to the passerby or casual acquaintence are less stigmatized than the ones that can be hidden. There might be something to the idea.
Of course you'd have to agree that de-stigmatizing is more socially important than privacy. I guess I'm privileged enough to have no stigmas, secret or otherwise, that I consider more important than my privacy. But I know others are less fortunate.
You go first, then. Let’s see your full medical records without redaction if you think it’s a net benefit.
I think there's value in reducing stigma around health conditions, but forcing poor people to reveal their medical conditions to the world isn't it.
I'm genuinely fine sharing my medical history, but I don't know if my lack of shame about e.g. testicular torsion, or the way that I lost my notes for a bit and unnecessarily got repeats of vaccines I'd already had, are a sign of being in possession of a boring medical history, or an indication of an uncommonly diminished shame response.
Whatever it is, I am aware that my lack of concern here is something which makes me different from normal people. I don't really get why people in general are ashamed of their medical histories, but I nevertheless absolutely do support everyone's right to keep such secrets, because there's a few specific cases where the medical history reveals something socially damaging either in the present or with a risk of it becoming so in the future, the obvious example of which is an abortion given the US seems to be facing a loss of freedom in this regard.
(Perhaps most people have something socially damaging in their medical histories, and I've just not noticed because nobody says the thing?)
The "I have nothing to hide" argument doesn't work for security, and it doesn't work for health care records either.
You might not have anything to hide now, but you might in the future. Someone you are closest to gets murdered or into a horrific violent accident right in front of you. Despite your best efforts this gives you crippling PTSD and you are committed involuntarily for a 72 hour hold. Now your future employer (legally or not) runs a quick records check and sees you have mental health concerns and really doesn't care about the context. Why roll the dice? Go with the candidate who was in a close 2nd and already a coin flip who doesn't have such a thing in their history.
Plenty of other scenarios that can happen to anyone even if they live the most perfect boring life imaginable and never do anything interesting ever. Plenty more for folks who step off the reservation of "acceptable social/corporate behavior" even a little bit.
Plus, if you want to protect folks like in your example of having an abortion on their record - you need to vehemently defend their right as a boring person yourself as that's the only way such individuals will ever be protected. It's like herd immunity but for privacy.
It's not about the people who have nothing to hide. It's about the people who do.
I don't know about 'a few specific cases'. STIs, mental health issues, pregnancies (interrupted or not, voluntarily or not), contraception methods and/or lapses, anything often misunderstood like MS or neurodegenerative diseases, huntington, substance use/abuse (voluntary or not), victim of assault (sexual or not), sterility/fertility/impotency/incontinence, any manageable medical issue someone might use to not give you a job, to rent you an apartment, although you do actually manage it well...
None of those I'd want shared anywhere, to anyone, against my will. Those (overall) are not rare.
This is not honestly engaging with GP's statement.
The benefit only accrues if the sharing is universal.
I am too private a person to agree with GP, but it does seem that most health issues that are visible to the passerby or casual acquaintence are less stigmatized than the ones that can be hidden. There might be something to the idea.
Of course you'd have to agree that de-stigmatizing is more socially important than privacy. I guess I'm privileged enough to have no stigmas, secret or otherwise, that I consider more important than my privacy. But I know others are less fortunate.
> The benefit only accrues if the sharing is universal.
The GP's statement wasn't for universal sharing. It was to force recipients of taxpayer money to share their medical records.
It's a gross demand: Force poor and old people to reveal their medical conditions to the world.
2 replies →
Exposing STDs and mental conditions is part of what HIPAA’s for. Putting everyone in glass houses just creates a massive panopticon.
By forcing the poorest to disclose their personal health issues?