Comment by abstractbill
1 day ago
It's nice to see peoples' success stories with diagnoses. I've been suffering from something for more than 20 years now. I was healthy until 2005. Then it seemed like I got sick with some kind of virus and just... never got better. I have unpredictable good stretches and bad stretches. During my bad stretches I can't get out of bed. I've mostly given up on the idea of a diagnosis myself, after seeing dozens of doctors over the years, with the most positive interactions being Stanford researchers telling me I'm a really "interesting" case.
I've seen that happen with Lyme Disease, and with Mono. Autoimmune disorders are notoriously difficult to diagnose.
In the 1980s, AIDS was like that. All these healthy, young people, just started getting these diverse horrorshow problems, then died.
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I'm in the same boat, have you tried seeing an integrative doctor? They can usually at least help extend the good periods.