Comment by tacone

The second opinion advice is gold and something we should always do when the stakes are high.

Not a doctor, that said: beside the surgical operations and medicines, one thing I'd consider adding is the ketogenic diet. Research medical studies and emerging evidence, pro/cons on the internet and seriously consider switching to it.

Depending on your conditions a state of kethosis might prove demanding to your body, but even staying very near to it might probably prove useful.